Kylie seems like your typical 5 year old. She loves dressing up, rollerblading, dancing, being silly, and playing with her friends. But what many don’t realize is that she is fighting a disease from the inside. Her lungs fill with mucus daily and she battles off colds, lung infections and bacterias. She is fed via a feeding tube for extra nutrition and weight gain. Weight is so critical in the fight against cystic fibrosis. When Kylie got her feeding tube at 18 months old, she was only in the 11the percentile. We are so happy to report that now, she is in the 65th percentile! We are still working on getting Kylie to eat more food so we can minimize her tube feedings. Kylie swallows enzyme pills every time she wants to eat, even if it’s just a snack or a cup of milk because she does not absorb fat and vitamins due to being pancreatic insufficient. Kylie also receives treatments every day to get the mucus loosened and out of her lungs. She does a shaking vest treatments totaling 40-60 minutes a day. She does up to 50 minutes of nebulizer treatments every day to help thin the mucous in her lungs and to fight off bad bacterias that are growing, such as psuedomonas. Kylie’s family will continue to fight until one day, CF stands for Cure Found! Take a peek at Kylie’s video to learn more about her story with Cystic Fibrosis.