Our 2nd Annual Breath of Hope fundraiser for CF is coming up on Friday, Sep. 5 at Whitetail Ridge Golf Club in Yorkville. Tickets are $40 and include appetizers, 2 drink tickets, and music entertainment! We will also have raffle baskets and a silent auction! For more information, visit
After treating pseudomonas aeruginosa in Kylie’s lungs for the past month, which involved an extra 40 minutes a day of nebulizer treatments, we are happy to report that Kylie’s last culture came back “normal flora”. Those are the best words to hear and the absolute best culture news to receive! The psuedomonas is gone! We do not need to keep up with the extra treatments, and now will monitor her cultures every couple months to make sure it stays away. Had she cultured it again, we would’ve had to keep up with those nubulizer treatments for the next 6 months minimum, so needless to say, we were so excited and relieved she fought it off!! Kylie has managed to dodge the flu and pnuemonia that Tyler had a few weeks ago, and has been staying very healthy! As a matter of fact, she has been hospital free for exactly 1 year now!!
In case you haven’t heard yet, Kylie’s bedroom is being completely made over by Brooke’s Dream Room! It is almost complete, so stay tuned for pictures of her bedroom princess transformation! It is very pink and glittery!
If you are planning on joining us for Kylie’s Krew CF walk on May 17 at the Naperville Riverwalk, please sign up soon. Our team can earn rewards for getting participants signed up and for raising money early. Last year our team earned a Kylie’s Krew sign at one of the mile markers, and we also earned a tent set up for us at the event! It also gives us an idea of many people to expect and gives us an idea if we need to order more shirts. We are hoping to have a great turn out again this year, so be sure to sign up and join in on the fun!
Mt. Prospect Irish Fest for Kylie’s Krew- Saturday, April 25, 2-11pm
Come on out to the Mt. Prospect Irish Fest for a great day of fun! The Mt. Prospect Fire Department will be serving up hamburgers and hotdogs and donating 100% of the profits to the CF Foundation. If you’d like to help out the firemen running the booth or flipping burgers, please contact Jim or Kerry. There will be organized shifts of volunteers throughout the day. Or if you’d just like to head out to the event to have a good time, be sure to stop by the Fire Department food table to eat! For more info. about Irish Fest, visit http://www.mpirishfest.com.
We have created this website and blog to keep our family, friends, and anyone else interested updated on Kylie’s health, upcoming fundraisers, and updates about Cystic Fibrosis. We hope that you subscribe to our blog to receive updates on Kylie and to join us in our journey to finding a cure for our daughter. We have been blessed with an amazing team of support through our friends, family, church, and community. It gives us great comfort knowing that we are not fighting this alone!
Great Strides is the Cystic Fibrosis Foundation’s largest and most successful national fundraising event. For the sixth year in a row, We will be participating in the Great Strides walk at the Naperville Riverwalk Grand Pavilion in May. Please help me meet my fundraising goal of $10,000 by sponsoring me. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education. Click here to view Kylie Krew’s Great Strides Page and to donate to this great cause.
Kylie’s Krew held its first annual Breath of Hope Fundraising Event this past May and it was a huge success. Due to the hard work of our volunteers and the generosity of area businesses, we were able raise awareness and funds to help further research to make CF stand for Cure Found. Read more about our event, and watch for news about our 2014 event here: Breath-of-Hope.com
“The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.” Read more about them here.