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Kylie's Krew

Fighting to Cure Cystic Fibrosis

2nd Annual Breath of Hope

Our 2nd Annual Breath of Hope fundraiser for CF is coming up on Friday, Sep. 5 at Whitetail Ridge Golf Club in Yorkville. Tickets are $40 and include appetizers, 2 drink tickets, and music entertainment! We will also have raffle baskets and a silent auction! For more information, visit www.breath-of-hope.com.

Posted in Blog

Updates!

After treating pseudomonas aeruginosa in Kylie’s lungs for the past month, which involved an extra 40 minutes a day of nebulizer treatments, we are happy to report that Kylie’s last culture came back “normal flora”. Those are the best words to hear and the absolute best culture news to receive! The psuedomonas is gone! We […]

Posted in Blog

Welcome to our Blog!

We have created this website and blog to keep our family, friends, and anyone else interested updated on Kylie’s health, upcoming fundraisers, and updates about Cystic Fibrosis.  We hope that you subscribe to our blog to receive updates on Kylie and to join us in our journey to finding a cure for our daughter. We […]

Posted in Blog

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